My dear friend Jill shared this with me the other day and it really speaks word for word what I feel on a daily basis. It's written by another mother that has special needs children.
You're such an amazing friend Jill. Thank you for being you and letting me be me.
From a ParentYou're such an amazing friend Jill. Thank you for being you and letting me be me.
Be Gentle with Me - I may be grieving (especially at first). I may need time to accept, then hurt over, the loss of the "normal" child I thought I would have.
Be Patient with Me - Remember that I have as many as 4 to 20 professionals telling me what I need to do to help my child. It's often overwhelming.
Respect Me - You are the expert in therapy, medicine, or education. I am the expert on my child.
Listen to Me - I spend hours thinking about ways to make life better for my child. I generally know if something won't work at all. I have a lot of good ideas. I read a lot, too.
Encourage Me - Take the time to tell me what I'm doing right. I never feel like I'm doing enough. Point out even the smallest progress you see, because sometimes small progress is all there is to keep me trying.
Understand Me - Understand that as hard as things get sometimes, I would not trade this precious person and all he adds to my life and family for a normal child. He is special, as all children are special, and I know that, even when I'm struggling.
Remember Me - If I burn out, I can't change my job. No one else will step in and take over for me. I am in this for the long haul, so I need to pace myself.
Thank You - Thank you for choosing to be a part of my child's life. Thank you for your patience and dedication. Thank you for caring.
- Robin Prince Monroe
